Home > Uncategorized > 10.03.10 – Update from Dallas

10.03.10 – Update from Dallas

On Monday Peter was moved from JPS to Baylor in Dallas so that our family could undergo some intensive training from the rehab specialists there on his home care. Right now Peter is not ready for the rehab program, so we will be working with him at home on the things the specialists have been teaching us. We have received great training from Occupational Therapists, Physical Therapists, Speech Therapists, and a Neuro Psychologist. We hope to bring Peter home in a week or so when we are done with our training.

It is easy to be impatient that Pete “wake up” completely. But we are learning that consciousness is a lot more complicated than we first thought. It is not always a matter of being awake or in a coma. It’s easier when explaining Peter’s situation, to think of consciousness as a scale with the left of the scale being unresponsiveness, and on the other end normal function.

Right now Pete has some responsiveness and we are hopeful that it will increase as the weeks and months pass, but the responsiveness is still pretty minimal and there is no way of knowing if it was intentional until he can communicate with us. Right now we are working with him on basic responses, such as trying to get him to swallow so he can manage his secretions and doing anything we can that might stimulate his body to remember the things he used to do.

When Peter was moved to Dallas, they were able to give him a new trach, and we think we have finally found the right fit for him. It is a silicone trach and much gentler on him. With all of the activity Pete has been receiving over the last week, they have not done much by the way of capping trials to wean him from the trach, but that is still a goal.

Here are the things you can pray for:

1) Continue to pray that Peter’s body would heal and that his brain would make new connections and respond to the stimuli we are trying to give him.

2) Continue to pray that Peter would not get any serious infections.

3) Pray for the health of the family. Now that we are bringing Peter home soon, it is crucial that our health stay strong so that there will be as many available family members to care for Pete 24/7.

4) Continue to pray that Peter will be trach free as soon as possible and that the secretions in his lungs would clear up.

5) Pray that our family would be able to take in all of the information we are receiving from the specialists at Baylor so that we can help Peter at home.

Thank you for all of the continued prayers and encouraging comments! They mean more to us than you could know.

For the family,
Hope

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Categories: Uncategorized
  1. Mark Moses
    October 4, 2010 at 3:26 am

    I’ve been checking this site almost daily. I see below that I can subscribe to this site by email. So I’ll do that. It must be only by God’s grace that both of you (and your families) are enduring the daily ordeals that you are facing. I think of Paul saying, “…we are afflicted in every way, but not crushed; perplexed, but not despairing…” God is obviously calling you to a higher level of faith than you ever had before – and certainly by a way you would never have chosen. But that’s how heroes are made. And you have become that to me. So has Peter. Both of you have given him a strong spiritual foundation to get him through such a time as this. Somewhere inside that injured body and patient spirit, I know God is pouring His grace and whispering His love to him. Every day; every moment.

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